I thought since its been so long since I posted, I would write up a quick post on E's Early Intervention Therapies. I haven't taken many pictures, but have a few of him working hard!
I'm so thankful every day for the 3 wonderful women who come to our house once a week (each). It's so nice to know that they don't care what it looks like: how many toys are scattered on the floor, if there's a pile of cookie crumbs or L's breakfast bowl in the living room, baskets of folded (or unfolded) laundry sitting around. They don't care about any of that, just about E and his progress. I love that you can tell, every time they see him, how much they care about how he's doing and what progress he's making. I won't show any photos of these three lovely ladies, as I don't have permission, but we appreciate them so much!
In case you don't know, E has been diagnosed with Complete Agenesis of the Corpus Collosum, meaning that his corpus collosum (the part of your brain that is the main bridge of communication between the two sides) did not develop. We don't know yet what this will mean with regards to his future, as there is a huge range of development for individuals with ACC. Some people never know they have ACC, and others are noticably affected in various ways, whether it be in their physical abilities, speech, etc. Whatever happens, we are believing that God has a plan for our beautiful boy. In my heart, I want him to be "normal" but we know he will be amazing no matter what his capabilities.
E has been working hard in therapy and is very close to sitting by himself! We are also working on weight bearing activities, and helping him take steps. He is still not very interested in toys, so we pray (and ask you to pray with us!) that the opthamologist, who we will see tomorrow, will find some way to help him be able to see those toys better.
So, without further ado, here are some photos of our almost one year old (TOMORROW!!!!) working hard at his therapy.
Daughter L was SO excited when our physical therapist brought this big ball (she's been asking for one everytime we go to walmart!), and has done a good job of "sharing" it with E! Here he is working on standing- Isn't that ball just the perfect size for him?! We also have him sit on it and roll it slightly so he has to work at bringing himself back up straight as well as doing tummy time on it which he seems to like a little better than the floor!
And of course, later when L is playing, she does some therapy too...
We do this activity with E also!
Working on crawling!
One of my favorite therapies with E is water therapy! We spend time in the pool, and are excited to see his legs start kicking more! I don't have any pictures of that, but here's a photo of what's been happening every time we go to the pool.
Yup, he's sleeping... I guess he really loves the water too!
As I said E turns 1 tomorrow; seems like this year has gone too fast for that...
We know lots of our family and friends have been praying for him, and we would love if you'd continue to do so! We are so excited to see what this year brings for him!
Hi,
ReplyDeleteMy 4 month old daughter has ACC as well. She also does physical therapy with Early Intervention once a week.And she has a big sister who is 17 months older than her.
Sounds like we have a lot in common!
I too blog about my children...check us out sometime! : )
Good job mama...looks like your son is doing amazing!
Love,
Kelly
Hi, I'm so excited someone's reading! I'm curious as to how you found me? Yes, we do have a lot in common! my daughter is 22 months older than my son. He's doing well, its just very frustrating for us, as we really want him to hit one of those big milestones. Its hard not to know what the prognosis is. Are you dealing with these same things? Please keep in touch if you want.... monkeyshinersbaby at yahoo.com
ReplyDeleteI clicked on your blog through Dana's MADE. My son turned one Aug 22nd. We have had some PT and OT therapies as well this year and have had to work really hard to get him to start eating food other than nursing, He has very mild sensory processing problems. He is developing very normally except a few things are just a bit off. I will be praying for your son and you. Keep up the the good work. Its hard work for the MOMMY too. GOd Bless
ReplyDeleteJessica...I love your blog! I never really checked it out before! I will pray for baby E. I didn't realize what you were all going through. YOu are right though..God has a great plan for him! Keep believing for the miracles to come! He's precious.
ReplyDelete